One In Five

Getting On With It

The final One in Five programme. From accessibility in the Christchurch rebuild to herding sheep with a disability. And from the IPC Athletics World Championships in Doha to running the New York marathon. We look back on the year's disability issues and revisit some of the individuals who shared their stories. Katy Gosset compiles a selection of programmes from the One in Five team.

Nic Brockelbank has just won the Junior section of the annual Attitude Awards; awards that recognise the achievements of people living with disabilities. The 13 year-old lives in Cambridge, has muscular dystrophy and has written and published cookbooks to raise thousands of dollars for charity. Nic's recently taken up road cycling. At first he could barely cycle one kilometre, now he is cycling 30 kms and has built up the strength in his legs so he no longer needs to use a wheelchair.

Going shopping in Taranaki has just become easier for the 29 per cent of its population who live with a disability. The Taranaki Disability Information Centre (TDIC) has been running a campaign encouraging business owners to re-jig the layout of their shops, provide seating, use easy to read signage and labels and make entrance-ways more accessible.

This week on One in Five: what does speed dating have to do with individualised funding for disability services ? Well, it can be very handy in finding a carer. Enabling Good Lives is a government trial that gives young disabled people control over their own funding. Two years in, Katy Gosset looks how the scheme is working. And she also finds its spawned some creative ways of recruiting support workers.

Nobody told Philip Wells he would never walk again. He was 15 andin the Otara spinal unit following a rugby tackle that had gone badly wrong. It was 1979.

Mike Gourley talks with American academic, Rosemarie Garland-Thompson about the modern day paradox confronting Disabled people: from a human rights angle, now has never been a better time to be a disabled person, but from a technological angle - with screening and genetic diagnosis on the rise, never have there been more of a threat to disabled lives.

A sensation for the senses. Thousands of people are flocking to New Plymouth's newLen Lye Centre. The doors of the strikingnew 12 million dollar building opened in late July and, in the first three months more than 53,000 people have visited. The Len Lye Collection curator, Paul Brobbel says the exhibitions and building are proving to have huge appeal and are bringing in people who would not usually venture into a gallery. He says the building's been designed to cater well for people with...

This week on One in Five: sibling stories. We may have fought like cats and dogs but most us who have brothers and sisters share a life long bond with them. And for people who have a sibling with a disability, looking to the future may bring some extra challenges. Katy Gosset visits a Second Generation workshop where families plan ahead to build a good life for a disabled member.

Mike Gourley checks out this year's IHC Art Awards, and talks with Auckland GP, David Beaumont, who's an opponent of the Medical model.

Mike Gourley meets the Judges and Organisers of this year's IHC Arts Awards 2015, and occupational physician Dr David Beaumont talks of the differences between healing and curing; seeing the whole person; and Doctor-Person partnership' to achieve greater health literacy - giving patients greater control of their health.

This week on One in Five: It's thought there are just six people in the country with Sanfilippo Syndrome, a rare degenerative brain disease. And Cody Heslop is one of them. The 13-year-old lives in a small farming settlement in Otago, surrounded by family and friends, and a mother who has now written a book to help demystify disability. Katy Gosset travelled there to meet them.

You can recognise a hearing dog because of its little yellow jacket. They work in the community to alert others to the fact the person they are with is deaf and, at home, their job is even more important. Hearing dogs are trained to respond to the fire alarm, the door bell, the telephone and even to the oven timer. They know to race up to the person they work with, tap them and lead them to the source of the sound. The dogs spend six months training at Hearing Dogs in New Plymouth and are...

This week on One in Five: from Dunedin to Doha. We meet two para athletes trading their chilly city for Qatar and a chance at medal contention. Holly Robinson and Anna Grimaldi are part of New Zealand's eight strong team heading to this month's International Paralympic Committee Athletics World Championships. Katy Gosset caught up with the pair as they trained at their Dunedin gym.

Parents, educators, academics and students have been giving parliamentarians a report card on the support available to children with austism, dyelxia and dyspraxia. Many say there are significant barriers to children reaching their potential and that the Government needs to address teacher training and take an entirely new look at who it deems eligible for learning support and how it is funded.

This week on One in Five: a glimpse into the world of Conductive Education.The holistic therapy was designed in Hungary in the 1950s for children with motor disorders such as spina bifida or cerebral palsy. The philosophy then became popular in the United Kingdom and gradually spread throughout other English speaking countries as well as Europe. Most New Zealand centres now offer Conductive Education and the "conductors", who carry out the therapy, are very much in demand. Katy Gosset pays a...

Kylee Black knows what it's like to be isolated because of a chronic illness, so she set up Spirit Sparkplugs.

Edith Morris contracted polio in the 1940's when she was 6 months old. Now, like 60% of people who have been affected by polio, Edith has Post-Polio Syndrome.

An insight into the world of Tourette's Syndrome. Canterbury woman, Tania Humphreys hits, kicks and sometimes throws things. And she has a wide range of verbal exclamations. But these are involuntary sounds and movements, or tics, that are part of a largely misunderstood condition. In this interview, originally broadcast on Easter Monday, Tania talks Tourette's with Katy Gosset

Five years ago, 21-year-old Georgia Steel hadn't picked up a viola. Now she's playing it in the National Youth Orchestra.